Learning Disabilities Mortality Review (LeDeR) Programme

What is the LeDeR Programme?

The Learning Disabilities Mortality Review (LeDeR) Programme is delivered by the University of Bristol. It is commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.

A key part of the LeDeR Programme is to support local areas to review the deaths of people with learning disabilities‌. The Programme is developing and rolling out a review process for the deaths of people with learning disabilities, helping to promote and implement the new review process, and providing support to local areas to take forward the lessons learned in the reviews in order to make improvements to service provision.

The LeDeR Programme will also collate and share the anonymised information about the deaths of people with learning disabilities so that common themes, learning points and recommendations can be identified and taken forward into policy and practice improvements.

 

Core principles and values of LeDeR programme

  • LeDeR values the on-going contribution of people with learning disabilities and their families to all aspects of our work.      
  • LeDeR takes a holistic perspective looking at the circumstances leading to deaths of people with learning disabilities and does not prioritise any one source of information over any other
  • LeDeR aims to ensure that reviews of deaths lead to reflective learning which will result in improved health and social care service delivery.
  • LeDeR's aim is to embed reviews of deaths of people with learning disabilities into local structures to ensure their continuation.

 

The Local LeDeR Steering Group

Brent and Harrow London Boroughs have a joint Steering Group which is represented by the following: local NHS Trust, Local Authority, Brent and Harrow CCG, Public Health, service users, carers/ families and advocacy organisations.

The Steering Group aims to take a strategic level oversight of the reviews of deaths of people with learning disabilities, driving transformation to improve care.

Meetings are held every 6-8 weeks.

The role includes the following: 

  • To oversee local reviewers and to deliver the requirements
  • To support the identification and sharing of best practice in the review process
  • Monitor actions and outcome
  • View reports of completed reviews
  • Demonstrate impact of changes

 

Harrow Reports

Resources

 

Who to contact

Please contact the Designated Nurse for Safeguarding Adults and Local Area Contact (LeDeR) for any information about LeDeR or if you wish to become a reviewer or wish to attend the Steering Group.

  • Email: christineasare-bosompem@nhs.net 
  • Landline number: 020 8966 1060
  • Address: 4th Floor, The Heights, 59-65 Lowlands Road, Harrow on the Hill, HA1 3AW

To notify of a death please use this link

Contact the LeDeR team here